CP QOL-Child Manual. Version 2
journal contributionposted on 23.11.2018 by ELIZABETH WATERS, ELISE DAVIS
Any type of content formally published in an academic journal, usually following a peer-review process.
This manual describes the development of the Cerebral Palsy Quality of Life Questionnaire for Children (CP QOL-Child), a condition-specific quality of life (QOL) questionnaire for children with cerebral palsy aged 4 to 12 years. CP QOL-Child was developed by an international multidisciplinary team of clinical and child health researchers, in collaboration with parents, and children with cerebral palsy. The team spanned Australia, the United States, Germany, and Scotland.
The CP QOL-Child was developed in response to an international call for a new QOL instrument for children with cerebral palsy. In 1991, the United Cerebral Palsy Association (UCPA) adopted its mission statement: ‘To affect positively the quality of life of persons with cerebral palsy’. QOL assessment is now a mandatory component of clinical trial research.
The CP QOL–Child is a measure of quality of life for children with cerebral palsy that can be used by researchers, clinicians, health professionals and educators to measure and assess changes in children’s QOL. This manual provides only basic information about administering and scoring the CP QOL-Child. Readers interested in background literature, development of the CP QOL-Child and psychometric properties should refer to academic publications.