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Collecting Paediatric Health-Related Quality of Life Data: Assessing the Feasibility and Acceptability of the Australian Paediatric Multi-Instrument Comparison (P-MIC) Study.

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posted on 2025-03-21, 03:34 authored by Renee JonesRenee Jones, Rachel O'LoughlinRachel O'Loughlin, Xiuqin Xiong, Mina Bahrampour, Kristy McGregor, Shilana Yip, Nancy Devlin, Harriet HiscockHarriet Hiscock, Brendan Mulhern, Kim DalzielKim Dalziel, On Behalf Of The Quality Of Life In Kids Key Evidence To Strengthen Decisions In Australia Quokka Project Team
BACKGROUND: Collecting data using paediatric health-related quality of life (HRQoL) instruments is complex, and there is a paucity of evidence regarding the comparative performance of paediatric HRQoL instruments. The Australian Paediatric Multi-Instrument Comparison (P-MIC) study was conducted to address this paucity of evidence. This study aims to understand the (1) feasibility of collecting data using paediatric HRQoL instruments in a research setting and (2) acceptability and feasibility for children and their caregivers to complete common paediatric HRQoL instruments using data from the Australian P-MIC study. METHODS: Data were from children aged 5-18 years from the Australian P-MIC study. Demographics, cost and time for data collection, dropout rates, and inconsistent responses were used to assess Aim 1. Participant-reported difficulty and completion time were used to assess Aim 2. Subgroup analyses included child age, report type (self/proxy), sample recruitment pathway (hospital/online), and online panel sample type (general population/condition groups). RESULTS: Overall, 5945 P-MIC participants aged 5-18 years completed an initial survey, of these, 2346 also completed the follow-up survey (39.5% response rate). Compared with online panel recruitment, hospital recruitment was more costly and time-consuming and had higher follow-up completion (33.5% versus 80.4%) (Aim 1). Data were of similar good quality (based on inconsistent responses) for both recruitment pathways (Aim 1). Participants completed each instrument in <3 min, on average, and >70% reported each instrument as easy to complete (Aim 2). CONCLUSIONS: The Australian P-MIC study was able to collect good-quality data using both online panel and hospital recruitment pathways. All instruments were acceptable and feasible to children and their caregivers.

Funding

Optimising evidence-based, equitable and efficient care for common child health conditions. : National Health and Medical Research Council | 1136222

History

Pagination

1604-

Volume

10

Publisher

MDPI

Issue

10

Journal

Children (Basel)

Language

eng

Location

Switzerland

Medium

Electronic

PII

children10101604

Publisher licence

CC BY

Online publication date

2023-09-26

Publication date

2023-09-26

Associated identifiers

grant.7876386 (dimensions-grant-id)

Publication status

  • Published online