LifeCourse_standard_terminology_report_V1.pdf (833.7 kB)
Download file

Describing data captured in the LifeCourse platform using a standardised terminology

Download (833.7 kB)

The LifeCourse website provides a bird’s eye view of what data has been collected across our cohorts. Measures used within each study wave are described by a common set of terms that capture the constructs assessed, which are then broadly summarised into a smaller number of domains. This enables easy and intuitive browsing and searching. Historically, LifeCourse has used an in-house developed set of terms and domain groupings to describe measures. This approach was flexible and allowed data custodians to describe data in a way that they preferred. However, with the scale that the platform has grown to, this approach is no longer tenable. Of particular concern is a lack of consistency, with the same measures described using different terms between studies. Standardising the way we describe and organise data captured across LifeCourse cohorts will allow us to achieve a more streamlined, consistent, and intuitive format for browsing and searching of cohort data elements. A vital first step is to standardise the LifeCourse terminology itself – the set of terms and groupings of these terms that are used to describe and organise the data. This is the focus of this report.


Royal Children's Hospital Foundation


Usage metrics