A Cross-Sectional Exploratory Study of Pain Profiles and Sensory Processing in Adolescents with Cerebral Palsy

ServiceAccount, MCRI REDCap

A Cross-Sectional Exploratory Study of Pain Profiles and Sensory Processing in Adolescents with Cerebral Palsy

Posted on 2025-04-03 - 00:13 authored by MCRI REDCap ServiceAccount

This project is a cross‐sectional exploratory study focused on understanding pain in adolescents and young adults with cerebral palsy. It uses clinical examinations, quantitative sensory testing (QST), and self‐report questionnaires to identify and describe different types of pain (such as nociceptive, neuropathic, and nociplastic) and their links to psychosocial factors. An optional component involves using a wristband to monitor physiological responses like sleep patterns. The insights from this study aim to inform better pain management strategies in the CP community.

CITE THIS COLLECTION

Harvey, Adrienne; ServiceAccount, MCRI REDCap (2025). A Cross-Sectional Exploratory Study of Pain Profiles and Sensory Processing in Adolescents with Cerebral Palsy. Murdoch Childrens Research Institute. Collection. https://doi.org/10.25374/MCRI.c.7751225.v1

https://doi.org/10.25374/MCRI.c.7751225.v1

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Project Identifier

115185

Data Steward

adrienne.harvey

Data Controller

aayushi.khillan

HREC Number

115185

Data Retention

Retention period: 15; Destruction plan: All electronic records containing personal identifiers, clinical data, and questionnaire responses stored in secure systems (e.g., REDCap) will be permanently deleted using certified secure erasure tools after the mandatory retention period. Any hardcopy documents will be disposed of via confidential shredding. Data will be retained until the youngest participant reaches age 25. After this period, the Coordinating Principal Investigator will authorize data destruction and notify all Site Principal Investigators of the disposal timeline, ensuring compliance with relevant regulations.

Storage Location(s)

Long-term storage location(s): HS - REDCap; Network folder: Data will be stored on the secure REDCap server managed by MCRI. The project data is housed in a project-specific folder.