Infection X Research Platform: Investigating current and emerging diseases of interest

ServiceAccount, MCRI REDCap

Infection X Research Platform: Investigating current and emerging diseases of interest

Posted on 2025-01-02 - 03:48 authored by MCRI REDCap ServiceAccount

To create a live research platform to describe current and emerging infectious disease of interest through:
• Clinical data repository utilising EMR and Redcap to record demographics, clinical features, and outcomes
• Biosample research repository for paediatric infections and controls

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Nguyen, Jill; ServiceAccount, MCRI REDCap (2025). Infection X Research Platform: Investigating current and emerging diseases of interest. Murdoch Childrens Research Institute. Collection. https://doi.org/10.25374/MCRI.c.7606220.v1

https://doi.org/10.25374/MCRI.c.7606220.v1

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Project Identifier

106150

Data Steward

jill.nguyen

Data Controller

shidan.tosif

HREC Number

106150

Data Retention

Retention period: 7; Destruction plan: As per the protocol Version 1.0 under Data Sharing, see the following excerpt: Data and samples will be retained for ≥ 7 years at the Murdoch Children's Research Institute (recruiting site). When it is no longer of use for related research purposes it will be destroyed by shredding all paper documents and deleting all electronic records, in consultation with MCRI IT, with the exception of the final dataset. At patient request, their data can be removed from the platform at any time as long as the request is made prior to the final data analysis. Patients who participate in the platform will have their samples, clinical information and signed consent or consent narrative retained indefinitely. As the platform has public health value to Australia, we will keep the data indefinitely. Records will not be destroyed without the consent of the Principal Investigator. Note, this protocol is yet to be approved by RCH Ethics.