Mackenzie's Mission is an Australia-wide reproductive genetic carrier screening project. This DMP relates to the 'long-term follow-up' of the Mackenzie's Mission being conducted by a PhD student. The PhD project will explore psychosocial and reproductive outcomes of reproductive genetic carrier screening across time.
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Tutty, Erin; ServiceAccount, MCRI REDCap (2024). Mackenzie's Mission: The Australian Reproductive Carrier Screening Project. Murdoch Childrens Research Institute. Collection. https://doi.org/10.25374/MCRI.c.7601054.v1
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Project Identifier
2019.097
Data Steward
erin.tutty
Data Controller
martin.delatycki
HREC Number
2019.097
Data Retention
Retention period: 7; Destruction plan: At the end of the data retention period, all data will be destroyed of in a secure manner, as appropriate at the time of destruction (e.g, shredding data in paper format and destroying electronic data in the most effective way available at the time).