Neurodevelopmental care for congenital heart disease

We are doing this research to improve follow-up care for children with heart disease. In order to better care for affected families and improve services for patients with CHD and their families, we want to hear about patient and family experiences. We would particularly like to hear about experiences of support for things like language, thinking, learning, movement, emotions, wellbeing etc. We will also ask health care professionals about delivering this kind of care for children with congenital heart disease. We would like to use the information we gather to inform the design of a model of care that supports children's neurodevelopment as they grow up, and the wellbeing of their family.